The Australasian Registry of Rare and Genetic Kidney Disease (ARRK) has national ethics approval from the Sydney Children’s Hospitals Network (SCHN) for the next five years.

ARRK will now obtain site specific applications (SSA) and recruit patients from over 40 hospitals in Australia and New Zealand to develop a database and to build cohorts of patients with rare and genetic kidney disease.

This is an important initiative to help those people with rare disease to gain a better understanding of their disease, to link them with other people with the same condition and support groups and to promote research into their rare kidney disease.