ARRK Terms and Conditions


About Us

These are the terms and conditions for the use of the Australasian Registry of Rare and Genetic Kidney Disease (ARRK) website Please read the terms and conditions carefully before using the website. The terms and conditions are outlined below and are the same whether you are a guest visitor or a registered user to the website. Your access to the website and it’s use are subject to these terms and by using the website you have read the terms and conditions and have agreed to accept them.



ARRK is a website and database set up to promote further understanding and research into rare and genetic kidney disease. The responsibility of the website is with the ARRK Working group and the website and database is under the governance of the Sydney Children’s Hospitals Network.


Information About Content

The ARRK website provides information and links to other sites about rare and genetic kidney disease. The content on this website is for information purposes only. The resources on this site should not be used as a replacement for care or advice from your medical doctor. If you have questions about a medical condition or health related issue, please consult your medical doctor or a healthcare professional.


The ARRK Working group aims to ensure that the information on this site is accurate and up to date. ARRK cannot be held responsible for any information on pages that may have errors or omissions, or for any loss or damage associated with the use of contents on these pages. Therefore we disclaim all liability or responsibility for users of the information provided on these pages or those who are referred to the website’s contents.

The ARRK website contains links to other websites. We are not responsible for the contents of these websites and have no control over them and therefore accept no responsibility for them.


Intellectual Property

We are the owner of all the intellectual property on our website. This excludes external sites we have links to. Our intellectual property rights include property rights, copyright trade mark and database rights. All rights are reserved.


Contact and Concerns

If you have any concerns about the material on the website, please contact the ARRK project officer on