INFORMATION FOR PATIENTS
Nephrotic Syndrome is caused by different disorders where the filtering units of the kidneys (glomeruli) are damaged.
What is Nephrotic Syndrome and how does it affect people?
- For an overview of Nephrotic Syndrome, the cause of this disease, how it affects people and further information about the genetics of this disease – please click the following link;
How do other people feel and what is their experience?
- NephCure Kidney International – Patient stories
Patient support groups
- Nephrotic Syndrome Disease Australia – Facebook page.
- Nephrotic Syndrome Trust (NEST)
Further information
- The National Kidney Foundation – Childhood Nephrotic Syndrome.
- Kidney Health Australia – Resources Library weblinks – Rare conditions – Nephrotic syndrome.
More detailed Information for Patients will be available on the ARRK website in the near future.
If you would like to be part of a Disease Specific Research Group (DSRG) for Nephrotic Syndrome, please contact the ARRK registry (arrkregistry1@gmail.com).
The resources on this site should not be used as a replacement for care or advice from your medical doctor. If you have questions about a medical condition or health related issue, please consult your medical doctor or a healthcare professional.
This page was last updated on 15th Oct, 2018.