INFORMATION FOR PATIENTS

Bartter Syndrome is a group of rare genetic disorders that result in specific defects in your kidney function.

What is Bartter Syndrome and how does it affect people?

• For an overview of Bartter Syndrome, the cause of this disease, how it affects people and further information about the genetics of this disease – please click the following link;
  • Genetics Home Reference – Bartter Syndrome

How do other people feel and what is their experience?

• Bartter Syndrome Foundation @ Ethan’s Cure
  • https://www.facebook.com/EthansCure/

Patient Support Groups

• Bartter Syndrome Foundation
  • http://www.barttersyndromefoundation.org/index.php/en/
• The Bartter Site
  • http://barttersite.org/

More detailed Information for Patients will be available on the ARRK website in the near future.

If you would like to be part of a Disease Specific Research Group (DSRG) for Bartter Syndrome, please contact the ARRK registry (arrkregistry1@gmail.com).

The resources on this site should not be used as a replacement for care or advice from your medical doctor. If you have questions about a medical condition or health related issue, please consult your medical doctor or a healthcare professional.

This page was last updated on 15th Oct, 2018.