INFORMATION FOR PATIENTS

Autosomal Recessive Polycystic Kidney Disease (ARPKD) is a rare genetic condition that may cause cysts in your kidneys.

What is ARPKD and how does it affect people?

• For an overview of ARPKD, the cause of this disease, how it affects people and further information about the genetics of this disease – please click the following link;
  • Genetics Home Reference – Polycystic kidney disease

How do other people feel and what is their experience?

•  PKD Foundation Australia – Stories
  • https://pkdaustralia.org/pkd-stories/

Patient support groups

•  PKD Foundation Australia
  • http://pkdaustralia.org/

More detailed Information for Patients will be available on the ARRK website in the near future.

If you would like to be part of a Disease Specific Research Group (DSRG) for Autosomal Recessive Polycystic Kidney Disease (ARPKD), please contact the ARRK registry (arrkregistry1@gmail.com).

The resources on this site should not be used as a replacement for care or advice from your medical doctor. If you have questions about a medical condition or health related issue, please consult your medical doctor or a healthcare professional.

This page was last updated on 15th Oct, 2018.