INFORMATION FOR PATIENTS
Autosomal Dominant Tubulointerstitial Kidney Disease (ADTKD) is an inherited kidney disease with inflammation seen throughout your kidneys but not in the “filters” (glomeruli).
It was previously called “Medullary Cystic Kidney Disease” or “Familial Juvenile Hyperuciaemic Nephropathy”.
What is ADTKD and how does it affect people?
- For an overview of ADTKD, the cause of this disease, how it affects people and further information about the genetics of this disease – please click the following links;
Further Information
- Rare Renal UK – patient information
More detailed Information for Patients will be available on the ARRK website in the near future.
If you would like to be part of a Disease Specific Research Group (DSRG) for Autosomal Dominant Tubulointerstitial Kidney Disease (ADTKD), please contact the ARRK registry (arrkregistry1@gmail.com).
The resources on this site should not be used as a replacement for care or advice from your medical doctor. If you have questions about a medical condition or health related issue, please consult your medical doctor or a healthcare professional.
This page was last updated on 15th Oct, 2018.