INFORMATION FOR PATIENTS

Autosomal Dominant Polycystic Kidney Disease (ADPKD) is an inherited condition that causes cysts (fluid filled sacs) to form in your kidneys, which results in loss of kidney function over time.

What is ADPKD and how does it affect people?

• For an overview of ADPKD, the cause of this disease, how it affects people and further information about the genetics of this disease – please click the following link;
  • Genetics Home Reference – Polycystic kidney disease

How do other people feel and what is their experience?

• PKD Foundation Australia – Stories
  • https://pkdaustralia.org/pkd-stories/

Patient support groups

• PKD Foundation Australia
  • http://pkdaustralia.org/
• PKD Charity UK
  • http://www.pkdcharity.org.uk/

Further information

• Renal Resource Centre
  • http://kidney.org.au/cms_uploads/docs/rrc-polycystic-kidney-disease.pdf

More detailed Information for Patients will be available on the ARRK website in the near future.

If you would like to be part of a Disease Specific Research Group (DSRG) for Autosomal Dominant Polycystic Kidney Disease (ADPKD), please contact the ARRK registry (arrkregistry1@gmail.com).

The resources on this site should not be used as a replacement for care or advice from your medical doctor. If you have questions about a medical condition or health related issue, please consult your medical doctor or a healthcare professional.

This page was last updated on 15th Oct, 2018.