Other international registries in this field are listed below;   Eurordis Rare Diseases Europe (http://www.eurordis.org/). National Organisation for Rare Disorders (NORD) (https://rarediseases.org/for-patient-organizations/ways-partner/patient-registries/). Orphanet (http://www.orpha.net/consor/cgi-bin/index.php). … Continue reading What Other International Registries Exist In This Field?