The development of ARRK has been approved by the Sydney Children’s Hospitals Network Human (SCHN) Ethics Committee, who the ARRK Working group report to annually.

Further, the ARRK Working group report to the Australian and New Zealand Society of Nephrology (ANZSN), via a written report.

All participants in the registry are given Patient Information Sheets, and have to Consent through their kidney doctor to be part of the registry (see ARRK STUDY Resources).

For further information about governance please contact Dr Hugh McCarthy (