Atypical Haemolytic Uraemic Syndrome (aHUS)


Atypical Haemolytic Uraemic Syndrome (aHUS) is an extremely rare condition where thrombi (abnormal blood clots) occur in the small blood vessels of the kidney.


Link to Gene Reviews or Guidelines


Further Information

  • Goodship, S.H. et al. (2017). Atypical hemolytic uremic syndrome and C3 glomerulopathy: conclusions from a “Kidney Disease: Improving Global Outcomes” (KDIGO) Controversies Conference”. Kidney International 91 (3); 539-551. 


More detailed Information for Health Professionals will be available on the ARRK website in the near future.

If you would like to form or be part of a Disease Specific Research Group (DSRG) for aHUS, please contact the ARRK registry ( or Dr Hugh McCarthy (


The resources on this page provide information for healthcare professionals. If you have questions about a medical condition or health related issue, please consult your medical doctor or a healthcare professional.


This page was last updated on 24th Oct, 2018.