Current List Of Disease Specific Research Groups


A list of current Disease Specific Research Groups (DSRGs) is shown below. Click on the links to find out further information about specific DSRGs.

If you would like to form or join one of the DSRGs listed, please contact the ARRK registry ( or Dr Hugh McCarthy (


Alport Syndrome and Thin Basement Membrane Nephropathy (TBMN) DSRG

Autsosomal Dominant Polycystic Kidney Disease (ADPKD) DSRG

Autosomal Dominant Tubulointerstitial Kidney Disease (ADTKD) DSRG

Autosomal Recessive Polycystic Kidney Disease (ARPKD) DSRG

Nephrotic Syndrome (NS) DSRG

Nephronophthisis and Related Disorders (NPHP-RD) DSRG