ARRK REGISTRY

 

The ARRK Registry represents the database where information is uploaded and stored for the purpose of research.

Links to the ARRK Registry database will be available in the near future.

 

For Patients

To be involved in the registry, you will first need to be recruited to the ARRK registry by your kidney doctor. They will provide the Participant Information Sheet and ask you to sign a Consent Form. A copy of these forms is available here .

When you consent, you will be given a login and password to access information about your own kidney disease. We hope in the near future to be able to use this to collect patient reported outcomes, such as quality of life surveys.

For Clinicians

If you would like to recruit patients to the registry or become part of a Disease Specific Research Group (DSRG), please contact the ARRK Registry leading co-ordinator Dr Hugh McCarthy for further information (hugh.mccarthy@health.nsw.gov.au).

Clinicians recruiting patients to the ARRK registry will be asked to provide a Participant Information sheet and Consent Form to their patient. It will be the responsibility of the clinical team (and research support staff) to consent their patients and enter their clinical details into the ARRK database.

Clinicians will be given a login and password to access the database for their own patients and those participating within their unit

For Researchers

If you would like to use a cohort of patients from the ARRK registry in your research, please contact the ARRK registry leading co-ordinator Dr Hugh McCarthy for further information.

ARRK REGISTRY DATABASE
  • CONTACT US

    Please contact the ARRK Project Officer at

    arrkregistry1@gmail.com

    or the lead co-ordinating principal investigator at

    hugh.mccarthy@health.nsw.gov.au

  • FEEDBACK

    We welcome comments about the ARRK website and registry.

    If you require further information about the ARRK registry or want to be part of or form a new Disease Specific Research Group (DSRG), please contact the lead co-ordinating principal investigator Dr Hugh McCarthy.