DSRGs

 DISEASE SPECIFIC RESEARCH GROUPS

 

Disease Specific Research Groups (DSRGs) will be set up for specific rare and/or genetic kidney diseases, so that experts including clinicians and researchers can use the cohorts and data for further research.

DSRGs will consist of a panel of both clinicians and patients and will allow information about specific diseases to be shared by experts in the field and patients who have experienced these conditions, which will lead to further research about a particular disease.

If you are a clinician with expertise in a particular rare or genetic kidney disease and would like to form a DSRG, please contact the ARRK registry (arrkregistry1@gmail.com) or the lead principal co-ordinator Dr Hugh McCarthy (hugh.mccarthy@health.nsw.gov.au).

If you are a patient with a specific kidney disease and would like to be part of a DSRG, please contact the ARRK registry (arrkregistry1@gmail.com).