ARRK – improving the lives of patients with rare and genetic kidney disease by better information sharing and by promoting research through a national patient registry
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ARRK is a web-based database for Australia and New Zealand with two principle  aims. Firstly to provide an information resource for patients, families and health professionals affected by rare and genetic kidney disease and secondly promoting research into these conditions by providing a platform to build national cohorts for secondary research studies with a single goal to improve the patient journey and overall outcomes.

  • Patients & Families
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  • Health Professionals
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  • Disease Specific Research Groups
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  • Researchers
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  • NEWS & EVENTS
    • ARRK WEBSITE LAUNCHED

      29th May 2019

        Welcome to the website for the Australasian Registry of Rare and Genetic Kidney Disease (ARRK). This website will provide information about rare and genetic…

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    • ARRK REGISTRY APPROVED

      29th May 2019

        The Australasian Registry of Rare and Genetic Kidney Disease (ARRK) has national ethics approval from the Sydney Children’s Hospitals Network (SCHN) for the next…

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    • ARRK FUNDING

      29th May 2019

      ARRK FUNDED BY ANZSN AND AOOB Funding for the development of the ARRK website and ARRK registry was initially provided by Australia and New Zealand…

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